Showing posts with label nicola. Show all posts
Showing posts with label nicola. Show all posts

Friday, 12 August 2016

Pea: Facing Other Babies When You Have Lost Your Own

This post was originally published on Pea's own blog www.onedayofwinter.com before being published on selfishmother.com. It is being republished here with the kind permission of Nicola who goes by the lifelong nickname of Pea, a tribute to how teeny tiny she is. Nicola writes short pieces based on her Kadampa Buddhist faith and her experience of infant loss after her beautiful baby son Winter Wolfe grew his angel wings at one day old.

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In the nine months that have passed since our son lived and died, entire pregnancies have evolved from the meeting of egg and sperm, to live and kicking ‘out-of-the-womb’ babies.  During that time, I have held more babies more times than I will ever hold my own, and each Facebook log in brings with it a flood of pregnancy announcements, bump shots, birth details and first milestones.

If infant loss is considered a taboo subject, and surprisingly to me, it is, then the feelings that arise from grieving mothers when faced with other babies, has to be the biggest taboo of them all.

It is one of those subjects that we would rather avoid and my stomach knots as I imagine people reading this with anxious trepidation.  But with a little gentle honesty and understanding from both sides of the coin, no knots need be involved.

Since losing Winter I have become part of the online infant loss community, a place thanks to the ever growing world of social media that probably didn’t exist even five years ago.  On there I have discovered a sea of other humans in the exact same situation as myself, childless mothers, desperately trying to make sense of the emotions that they battle continuously in this thick swamp of grief, all whilst they mourn their loss and try to maintain their everyday lives.  I know from talking with these newfound friends, that the feelings I experience are commonly shared and natural, and through my Buddhist practices I am working hard to make sense of them and, more importantly, ease them.

Firstly, this is taboo because, well, no one wants to admit to having negative feelings towards an innocent baby, and the initial feelings that we experience can be trailed by a huge amount of guilt and shame.  But the truth is not so scary.  We are not experiencing these feelings because we are met with a healthy baby, we are experiencing these feelings because we don’t have ours, and those feelings arise simply at the moment we are confronted with that reality. Most regular people experience heightened emotions of some kind around little babies, creating a new life is a highly charged event.  And when you have had your own baby pulled from your arms so suddenly, those emotions are heightened tenfold.  We are talking about instinctive, animalistic emotions, feelings that are knitted into your DNA, and threaded into every atom. When things go wrong and your baby dies, these intense emotions derail spectacularly and can be terrifyingly difficult to understand and exhausting to manage.

Speaking from my own personal experiences now, being around other babies can be difficult.  Seeing other people share the happiness at bringing their baby home from hospital can be painful. Hearing other people talk about the achievements of their young children can be heart breaking.

Can be.

Not always.

The varying factors shift and change. There have been many, many times when I have successfully held a newborn baby and separated the experience from that of my own, and there have been other times when I’ve had to politely avoid a situation or paint on a brave face.  The feelings that arise in that instance depend mostly upon other unrelated events.  How am I feeling that day, in that moment leading up to meeting the baby?  Has it been a difficult morning, am I feeling particularly low?  Or am I feeling light and positive?  Other factors can be thrown into the mix. Babies tuning one, babies born around the same time as my own, babies who have just been freshly delivered.  Sometimes it’s effortless and sometimes it’s impossible. Each day is different and each baby brings with it its own ties and connections.  A close family friend that has a baby changing right at your very touch, an acquaintance in a shop with a baby whose name you can’t remember or an online face so familiar but far enough out of reach that it’s safe.  As with everything in life, each individual experience is dependent upon the mind in that moment.

Jealousy is an emotion that gets thrashed around feverishly after your baby dies. When someone has something that you want for yourself, it is our self cherishing mind which leads us to jealousy.  If we experience even some low level jealousy when someone gets a promotion we wanted or a wedding we dreamed of, then we can begin to understand the burning jealousy that can be overpowering when something as precious as a child is involved. It is, I believe, completely natural to experience that, but it can be overcome with time.  When I see a birth announcement or a first scan photograph, I can get that first sharp ping of jealousy.  I recognise it, and I face it.  On the one hand, I’m thoroughly relieved for healthy babies being made and born, who wouldn’t be?   On the other hand I am reminded that mine wasn’t. Sometimes it takes just a minute, other times a day or even a week of contemplation, before I feel relaxed and able to sincerely congratulate.  During that time, I am reminded by Buddha’s teachings, that my happiness is not dependent upon others, only myself.  I have a choice to firmly face and avert negative minds.  I remember that whether or not that baby was created and born, my son is not here.  If other babies stopped existing, my son would still not exist.  Other babies being born does not change my situation, I can therefore choose to harbour negative feelings for no purpose other than to poison myself, or to let go of them and rejoice in the good news.  A jealous mind is simply a mind that wishes for someone else to not experience happiness at a time when we feel that we are not experiencing happiness for ourselves and realising that our experiences are entirely unrelated helps us to enjoy the happiness of others.

But of course, it is not easy and it takes great effort.  I am only human with human emotions, I am far far far from a perfect enlightened being.  Feelings arise, they are intense, all consuming, I cannot always gather the reigns and steer my horse with a smile and a jaunty tip of my hat.  Sometimes, I can’t do it.  And honestly, I think that is ok.  And I think it’s even better if the mother who is no doubt looking after their live baby with great love and affection, can understand that sometimes you just can’t do it either.

With every baby I see I am reminded that Winter has a lifetime of missed opportunities.  My heart aches, I struggle to find words to describe the longing I experience to have my son here with me, knowing I will never have that chance.  For the rest of my life I will track his age, I will see children around me that are growing at the same pace, and with every milestone I will miss my boy and wonder how his first steps and first day at school would have played out had he just been given the gift of life.

I’m sure most mothers would understand that after holding your baby as they died, holding theirs will ultimately bring with it some level of pain and I have discovered that with some open conversation and gentle effort from both teams, the experience can one day bring with it some joy amongst the heart ache.

Monday, 15 April 2013

Nicola: Life After Loss



Is there life after the loss of a child?

I breathe, I am a mother to my children, I am a wife, I work, I can function on daily basis so there is life... but it's not the same life.

We lost our beautiful little boy when he was 2 years old. Our first son, Ethan: our world, our reason for being. He was born early at 33 weeks and due to NEC he became extremely poorly. He suffered numerous medical complications and, as a result, many life-saving operations before he was 10 weeks old. He was left with Quadreplegic Cerebal Palsy and other medical conditions. We embraced life with our son. Living a happy family life with a fair few visits to hospital. Ethan always bounced back, he was such a fighter. In May 2010 he contracted Parafluinfluenza type 3. The specialist told us even healthy children can't fight this this. Although in my mind I knew this was the end, my motherly instinct was stronger and I knew we had to give him every chance. And we did... until I could see that he was so weak and had fought so hard that he was exhausted.

I made the decision to let him go. To let him die. Me... his own mother... At the time I was disgusted with myself... angry. A mother protects her children, she doesn't let them die. I always vowed I would do what was best for Ethan. Now I can see that it was the best decision for him. The other option would have been to ventilate him and I knew he wouldn't survive that. The specialist said he wouldn't survive that. That would take away all our choices for him. He would die in hospital instead of at the hospice where he had friends, who were like family.

Ethan passed away peacefully in our arms in the hospice, where we stayed with him until the day of his funeral: protected, nurtured and loved. We were lucky, we were so lucky. The minutes, hours, days that followed are so blurry. Do we all count in that time frame at the beginning? I am now at years and they have passed so quickly. I am further away from my last kiss, my last cuddle, that last smile. His clothes have lost their smell of him. Realising that was a very hard day.


Is there life after loss? I guess the answer is yes. Yes there is. However, it's a different life. A life that will always be bittersweet: where every happy moment will be filled with that sadness that Ethan isn't here with us. Although no longer is every day filled with that heart-wrenching feeling; the feeling that my throat will close over and that my heart and head will burst; that feeling of never ending sadness, I still grieve every day. I just grieve differently than at the start. I have always grieved openly, cried when I am sad, spoken his name, included him in everything we do. From lighting candles to making pictures on the sand. I write his name in cards and have baubles for him at christmas. He will always be our son, he isn't with us but is now all around us.

In the past few years since Ethan's death, I have went on. It was hard at first, it was so hard. I cried every day and night. I went back to work whereas before I was his main carer. I focused on going to university and gained a BSc. I now work as a nurse in children's palliative care. Maybe I can offer parents something extra. Maybe... I can listen better and help them create memories. Maybe if I can help just one family our terrible loss won't be in vain. Maybe I can change all the negative about the experiences families have. In my heart, I really wished Ethan would be the last child ever to die.

There is a different life after the loss of a child. There are dark days still but I embrace them. They are dark because I loved my little boy so much. I loved him and no matter how unfair it is, no stamping of feet will bring him back: no amount of screaming, sleeping, shouting, swearing, bargaining and begging. I know, I have tried all of these until my throat hurt and my eyes felt like sandpaper.

So what now? Now I will live my life without my son. I will continue to include him in everything, even including him in our wedding with a special candle and a poem.

These are our children, our precious children. We are allowed to grieve openly and honestly. We shouldn't be afraid to grieve or be told how to grieve. It will always hurt... I just hope that someday you to will be able to think of your child and smile in your heart. You hurt because you love them so much. We now walk a different life... but we walk it together with our precious children in our hearts.