When you google it, various medical documents come up but there is no human face to it. Well, that's not strictly true as it is now mentioned on the Silent Love blog following my contact with the blog's author. That post now appears in the google search and it is my hope that once this blog goes live, anyone else searching for this may come across this post. Any pooling of information and resources is a step forward.
Massive Perivillous Fibrinoid Deposition (MPFD & sometimes referred to as Massive Perivillous Fibrin Deposition)… basically my placentas become clogged with blood clots and fibroids. These affect the function of the placenta and ultimately causes it to fail as it struggles to support my growing babies. There are different schools of thought. It could be due to an as-yet-undiagnosed blood-clotting condition or it could be due to an immune response. My bloods have consistently come back clear and we are of the belief that it is an immune response that causes this. My immune system is attacking my placentas causing the clots and fibroids to form and ultimately rendering my placenta useless. My girls fought hard but to no avail. My body let them down (despite being on aspirin and heparin when pregnant with Grace).
We are now pushing for a treatment plan that has worked for others with similar conditions. This involves aspirin, heparin, steroids and some sort of immune infusion therapy (IVIG or Intralipids, neither of which are available on the NHS). Our consultants have warned us that we are now sailing in unchartered waters. Time will tell.
If anyone comes across this post in the hunt for more information on MPFD, please feel free to contact me via the blog email address.
You can read more about my journey here Clara: My Story and here Clara: When Loss Keeps On Happening. This gives updates on our journey using the treatment plan we fought for which unfortunately did not work for us.
You can read more about my journey here Clara: My Story and here Clara: When Loss Keeps On Happening. This gives updates on our journey using the treatment plan we fought for which unfortunately did not work for us.
